Today was a nasty, nasty day. It's a very long story that I don't feel like getting into on here, but what was suppose to be a visit with the nutritionist and then some blood work, ended up with a 6.5 hour visit to the ER all because the doctor who saw us (in the ER) didn't really listen to what I had to say. SO FRUSTRATING!!! No harm done, other then we spent the whole day at Children's when it should have just been an hour or two.
The good news is that M seems to be slowly recovering from the flu. She has started to pee again, not a whole lot, but something at least. And she has kept down the bottles she has drank. Still runny stools, but I'm sure that will improve shortly.
The other good news is that we had a good visit with the nutritionist this morning. So since she is at the highest caloric intake she can be on with her formula, we are now adding some glucose to her formula that will also bump up her calorie intake. Adding this will sort of give us answers like the feeding tube would have. So this is sort of replacing that. If M continues to not gain weight on this stuff, then we will know that she isn't absorbing the nutrients she should be. So I look forward to seeing what happens here with this.
I also picked up her new antacid medication today. Good thing we have coverage, because if we didn't, this stuff would be $100/month. I realize that may not seem like a lot, but with everything else that she is on, it's starting to add up. But another thing to be thankful for, Health insurance!
When we got home today, there was also message from our doctor to call her on Monday, because she has a slight change of plans she said. Nothing serious, but a change. So I'm very curious as to what that will be. I'm wondering if she will change her formula. Anyway, I'll update on Monday when I talk to her.
Mark and I are starting to become quite weary, so please pray for us that we would continue to have whatever it is that we need to keep taking that next step forward.
thinking of you guys always. let me know if there is ever anything i can do for you.
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