It's exactly a week today since we made the switch over to Nutramigen. Things are still going very, very well. She's eating more then she has and considering what's in her bottle, I hope that this really helps her continue to catch up on the weight gain.
My only concern now is that her bottles are so heavy, that getting her to eat solids and drink bottles is a little tough. Those bottles fill her up good and proper, so I have to be a little creative with when I give her, her solids too. But that's something we can deal with. That is a very minor issue in my opinion.
Tuesday, March 27, 2012
Friday, March 23, 2012
Good Things
There are some good things going on with M. We are on day 4 of the formula switch and have noticed some big changes.
A few changes I've seen:
1) Drinks more
2) It isn't a fight to get her to drink
3) She is happier
4) More energy, not nearly as sleepy
5) Urine isn't concentrated
Those are the biggest. I've noticed more, but they wouldn't mean anything to anyone else, so I won't go into all of them.
The other good thing that has happened is that M has finally doubled her birth weight. She is now 15lbs!! Wow, my doctor and I were surprised to see that! So I'm happy that she is finally gaining like they would expect her to, given the amount of calories she is taking in. So that's fantastic news!!
A few changes I've seen:
1) Drinks more
2) It isn't a fight to get her to drink
3) She is happier
4) More energy, not nearly as sleepy
5) Urine isn't concentrated
Those are the biggest. I've noticed more, but they wouldn't mean anything to anyone else, so I won't go into all of them.
The other good thing that has happened is that M has finally doubled her birth weight. She is now 15lbs!! Wow, my doctor and I were surprised to see that! So I'm happy that she is finally gaining like they would expect her to, given the amount of calories she is taking in. So that's fantastic news!!
Monday, March 19, 2012
Formula Change
We're switching to Nutramigen today. We're really hoping that with adding some bananas and sugar, she'll actually drink it. Of course we're mostly hoping that she'll start to chub up and start drinking more then what she does.
The nutritionist called this morning to see how things were going, so I'm thankful that she is only a phone call away if things don't go well.
The nutritionist called this morning to see how things were going, so I'm thankful that she is only a phone call away if things don't go well.
Friday, March 16, 2012
Updates
I apologize that this is a little late. It's been a week since M had her scope. But it's been close to the craziest last two weeks of my life and has been quite stressful, so writing about it wasn't really what I wanted to do.
Anyway, M had her scope on Friday of last week. She did great. They didn't find a whole lot of stellar results but some findings that may or may not explain things. (Again, this little girl is a total mystery) Her passage ways are quite small. Smaller then they would be for someone her age, as well she has some minor irritation and swelling that could possibly point to an allergy or sensitivity. So we left with the instructions to switch formula to a hypoallergenic one. We haven't done that yet, but will be shortly. He also took some samples of her tissue to check for other things like Celiac, infection, Cancer, etc. This is a standard part of the procedure, so he isn't thinking we'll get anything positive from those results. Those come back in a month.
So we got through the weekend somewhat okay, but by Sunday I was concerned about her breathing. It was very labored and very loud. We waited until Monday morning to hear from Day Surgery and when they called and heard her breathing, they told me to get her into emerg. So we did. We spent all day in emerg giving her mask treatments, steroids and nothing seemed to improve her breathing. They did a few x-rays and found some narrowing in her upper airway. So by the end of the day she had improved enough to avoid another stay in the hospital (thank goodness) but we were told we needed to go see Ear, Nose and Throat this week. So we did just that as well. Wednesday we went to ENT, and was told that she was fine and there was nothing to worry about. But was also told that she just can't handle these things as well. When I asked why, and a few other questions, he didn't really have any answers. Again. So I was frustrated to say the least. We're always told "because of her issues" blah blah blah....well what exactly are her issues? Nobody seems to be able to tell us that yet. Just that she has some.
So here we are, her breathing is improving, but still not sounding great. She is doing a lot of breath holding and it's driving me crazy. My doctor has been calling her often to check on us due to Benny also having some health concerns, so I've told her about her breath holding and so we'll talk about that at her appointment on Thursday.
That is a coles notes version of the past two weeks.
Anyway, M had her scope on Friday of last week. She did great. They didn't find a whole lot of stellar results but some findings that may or may not explain things. (Again, this little girl is a total mystery) Her passage ways are quite small. Smaller then they would be for someone her age, as well she has some minor irritation and swelling that could possibly point to an allergy or sensitivity. So we left with the instructions to switch formula to a hypoallergenic one. We haven't done that yet, but will be shortly. He also took some samples of her tissue to check for other things like Celiac, infection, Cancer, etc. This is a standard part of the procedure, so he isn't thinking we'll get anything positive from those results. Those come back in a month.
So we got through the weekend somewhat okay, but by Sunday I was concerned about her breathing. It was very labored and very loud. We waited until Monday morning to hear from Day Surgery and when they called and heard her breathing, they told me to get her into emerg. So we did. We spent all day in emerg giving her mask treatments, steroids and nothing seemed to improve her breathing. They did a few x-rays and found some narrowing in her upper airway. So by the end of the day she had improved enough to avoid another stay in the hospital (thank goodness) but we were told we needed to go see Ear, Nose and Throat this week. So we did just that as well. Wednesday we went to ENT, and was told that she was fine and there was nothing to worry about. But was also told that she just can't handle these things as well. When I asked why, and a few other questions, he didn't really have any answers. Again. So I was frustrated to say the least. We're always told "because of her issues" blah blah blah....well what exactly are her issues? Nobody seems to be able to tell us that yet. Just that she has some.
So here we are, her breathing is improving, but still not sounding great. She is doing a lot of breath holding and it's driving me crazy. My doctor has been calling her often to check on us due to Benny also having some health concerns, so I've told her about her breath holding and so we'll talk about that at her appointment on Thursday.
That is a coles notes version of the past two weeks.
Wednesday, March 7, 2012
Update from GI
Our appointment went really well today. He not only thought a scope would be a good idea, but also ordered up some new blood work and told me the scope would be happening on FRIDAY!!!! YAY!!
Anyway, the blood work has found some possible concerns, so we are repeating the blood work tomorrow and if it comes back positive again M will be admitted for further testing. This is separate and apart from the scope. The scope will still happen regardless, but this blood work could have opened the can of worms that we have been waiting for! It will involve quite a bit more testing...which they have been humming and haughing over doing, so I'm happy that it will possibly now get done.
So tomorrow we go for a full work over to make sure M can handle the scope and that there won't be any surprises. They are being a little more careful with her then they would normally, just because she has so many different concerns that haven't been resolved that they wouldn't want to be unprepared for any of these things to show their ugly face in the middle of surgery. Make sense?
We will also get that blood work repeated tomorrow, so considering the doctor had called us about an hour and a half after we got the blood work done to let us know there were concerning results, I'm sure that means I will hear something tomorrow if tomorrows results are equally concerning.
Then Friday, we go in for the scope and hopefully get more results. I feel like we're very, very close. Very close. It's amazing how God has opened doors this week. We have found out more today then we have in months!!!
I will update when I can. Please continue to pray for us in the next few days.
Anyway, the blood work has found some possible concerns, so we are repeating the blood work tomorrow and if it comes back positive again M will be admitted for further testing. This is separate and apart from the scope. The scope will still happen regardless, but this blood work could have opened the can of worms that we have been waiting for! It will involve quite a bit more testing...which they have been humming and haughing over doing, so I'm happy that it will possibly now get done.
So tomorrow we go for a full work over to make sure M can handle the scope and that there won't be any surprises. They are being a little more careful with her then they would normally, just because she has so many different concerns that haven't been resolved that they wouldn't want to be unprepared for any of these things to show their ugly face in the middle of surgery. Make sense?
We will also get that blood work repeated tomorrow, so considering the doctor had called us about an hour and a half after we got the blood work done to let us know there were concerning results, I'm sure that means I will hear something tomorrow if tomorrows results are equally concerning.
Then Friday, we go in for the scope and hopefully get more results. I feel like we're very, very close. Very close. It's amazing how God has opened doors this week. We have found out more today then we have in months!!!
I will update when I can. Please continue to pray for us in the next few days.
Tuesday, March 6, 2012
Appointment
Praise Jesus! We got an appointment tomorrow with the GI at noon! I will update once we're home!
Friday, March 2, 2012
Prayer Please
I am feeling like I'm getting to the end of my rope, so here are some specific things you can pray for if you are praying for us:
1. That the GI specialist would get us in this week. If we don't get in this week, we're waiting for another month
2. That I would get all my thoughts and questions together, and speak them clearly to the GI specialist. There is so much to talk about and remember, that I just can't keep it all straight anymore, and I feel like I just end up leaving these appointments disappointed because I didn't get anything out that I wanted to talk about and question
3. That the GI specialist would listen to my concerns and would do the scope like he's thinking about doing and that it would be done soon
4. That we would leave it all in God's hands (I feel kind of silly asking for specific prayer requests and yet asking for prayer to leave it all in his hands at the same time, but alas, that is what I'm doing)
5. That we would get some kind of answer soon so that we can move on with our lives
Thank you again for all your prayers and words of encouragement.
1. That the GI specialist would get us in this week. If we don't get in this week, we're waiting for another month
2. That I would get all my thoughts and questions together, and speak them clearly to the GI specialist. There is so much to talk about and remember, that I just can't keep it all straight anymore, and I feel like I just end up leaving these appointments disappointed because I didn't get anything out that I wanted to talk about and question
3. That the GI specialist would listen to my concerns and would do the scope like he's thinking about doing and that it would be done soon
4. That we would leave it all in God's hands (I feel kind of silly asking for specific prayer requests and yet asking for prayer to leave it all in his hands at the same time, but alas, that is what I'm doing)
5. That we would get some kind of answer soon so that we can move on with our lives
Thank you again for all your prayers and words of encouragement.
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