Friday, March 16, 2012

Updates

I apologize that this is a little late. It's been a week since M had her scope. But it's been close to the craziest last two weeks of my life and has been quite stressful, so writing about it wasn't really what I wanted to do.

Anyway, M had her scope on Friday of last week. She did great. They didn't find a whole lot of stellar results but some findings that may or may not explain things. (Again, this little girl is a total mystery)  Her passage ways are quite small. Smaller then they would be for someone her age, as well she has some minor irritation and swelling that could possibly point to an allergy or sensitivity. So we left with the instructions to switch formula to a hypoallergenic one. We haven't done that yet, but will be shortly. He also took some samples of her tissue to check for other things like Celiac, infection, Cancer, etc. This is a standard part of the procedure, so he isn't thinking we'll get anything positive from those results. Those come back in a month.

So we got through the weekend somewhat okay, but by Sunday I was concerned about her breathing. It was very labored and very loud. We waited until Monday morning to hear from Day Surgery and when they called and heard her breathing, they told me to get her into emerg. So we did. We spent all day in emerg giving her mask treatments, steroids and nothing seemed to improve her breathing. They did a few x-rays and found some narrowing in her upper airway. So by the end of the day she had improved enough to avoid another stay in the hospital (thank goodness) but we were told we needed to go see Ear, Nose and Throat this week. So we did just that as well. Wednesday we went to ENT, and was told that she was fine and there was nothing to worry about. But was also told that she just can't handle these things as well. When I asked why, and a few other questions, he didn't really have any answers. Again. So I was frustrated to say the least. We're always told "because of her issues" blah blah blah....well what exactly are her issues? Nobody seems to be able to tell us that yet. Just that she has some.

So here we are, her breathing is improving, but still not sounding great. She is doing a lot of breath holding and it's driving me crazy. My doctor has been calling her often to check on us due to Benny also having some health concerns, so I've told her about her breath holding and so we'll talk about that at her appointment on Thursday.

That is a coles notes version of the past two weeks.

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