Second Opinion and the Flu

Well the very bad and discouraging news is that M has lost weight. Yes, we did take into consideration that she has the flu, but even without that, there still would have been a loss.  Anyway, she is now back down to the bottom of the growth chart again. :( Very discouraging for me, and makes it a little more real to me each time I see that, that something really isn't right with her. Each time I take her to be weighed, I always think this time it will be better...and then it's not. Reality strikes again. 

We are not in the clear with her flu yet either. I'm watching her very closely for dehydration, and may very well be making a trip to Children's tonight yet if she doesn't start peeing soon.

Anyway, the very good part of today's meeting was that I met with the new doctor. Fantastic. I spent over 2 hours with her, and we went over EVERYTHING from day 1! We talked about a lot of stuff, so I can't put it all on here, because there was just so much. The just of it is, we are starting over with all the testing. Everything she's been tested for, she's being tested for again, and then we are also moving on to a few new tests.

So tomorrow after we meet with the nutritionist, I am taking her for some blood work to test her thyroid, then we are also having her poop tested for fat content as well as for something to do with her having the flu now.

She is also doing a metabolic screening, scope down her wind pipe, CT of her chest, changing her reflux meds to a acid blocker, testing again for milk protein allergy, chest x-ray (looking for any abnormalities of her heart they couldn't pick up on the echo), plus we are being referred to the "feeding" doctor as she called her, and she's trying to get us in to respirology quicker then the appointment we have now at the end of Feb.

Her thoughts were more along the lines of something metabolic or allergy then heart or anything like that, but she's going over everything again.

I know I have forgotten a lot, because there was so much discussed and so many tests she mentioned. The ones I've mentioned here, are all being arranged as we speak, so that's why I remember those ones. The rest are also being arranged, but may take a little longer, depending on the results of some of these first ones.

We are SOOOOOO thankful that she is doing all of these. I don't think anyone can know how thankful we are.  We are also both very scared. Scared of the results, or lack of results. I'm not sure which is more scary at this point.

Thank you again for all your kind words and support. Please continue to pray for all of us (especially sweet little M) as we continue with all these tests. Some of them won't be very comfortable for her, and some will involve sedating her, so please pray for those especially. Thank you,
Lisa