Today was M's 4 month appointment. She lost weight. Not a huge amount, but anything is more then what we want from her.
Anyway, so we are just continuing to wait to get into see the next round of specialists. Those involve an allergist, a "feeding doctor" as they call her, a GI specialist, a metabolic specialist, the respiratory specialist, and I know there are more, but I can't remember them all at the moment. My doctor also mentioned that it is possible that if things don't improve soon for her, they are considering putting us back into the hospital to try and figure it out all from there. I told them I was fine with that, as long as that is what they do. Not like last time where they just throw their hands up in the air after a few tests and send us home.
What might get us into the hospital now sooner then that though is that M is really not eating a whole lot these days and after a discussion with the nutritionist, she is going to be recommending to my doctor that they put a feeding tube in. If my doctor agrees with her, that will require a hospital stay in the near future. So the plan for now is to see how she does throughout the weekend and report back on Monday or Tuesday, unless I hear from my doctor before then.
So the roller coaster ride continues. Next appointment (Weigh in): Friday, Jan.20
thanks for keeping us up to date. as disappointing as this one is... i'm sorry lisa.
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