Tuesday Night

Well much to my dismay, we are home.  Not AT ALL what I want, but I don't have much choice. I voiced my concerns time, and time, and time again today to pretty much anyone who had ears and was anywhere close to me.

We do have a few answers in that they have ruled things out. But we still don't have an answer either. I still have major concerns. Maddy seems to be a borderline kid. She JUST pees enough to not make them concerned, she JUST eats enough (and most of the time doesn't) to keep them somewhat happy, her blood sugar is just a few points higher then the "low" level, and the one thing she doesn't do enough of is gain weight.

So she is right on the line between doing even more testing, and just waiting to see what happens. So for now, we have to start doing weekly weigh ins again (starting tomorrow), I have to keep track of how much she eats in a day. Down to the very last drop, and I need to pay attention to her diapers and how wet they are.  We are also being sent to another specialist, but I don't know when. It's a gastro doc. We're also going back to the cardiologist, and they may get us to start checking her blood sugars regularly. But that we aren't sure yet about.


So anyway that is where we are at.  I'm very overwhelmed and frustrated. I'll have a better idea of how we're moving forward tomorrow after we see her ped.

I'll continue to update as we see doctors and decide how to move forward.