Friday, December 16, 2011

Update as of Friday night.

I have a lot of people looking for updates on triple M so I will try to keep this updated so I don't have to send the same info to 20 different people. Anyway here is the latest as of Friday night: They were thinking M may have had an allergy to milk so they switched her to a hypoallergenic formula called nutramigen. She took to it fairly well and put on more weight in a day then she has yet. She also was eating it a little better then she had been and it really changed her poop to a better looking colour and not NEARLY as smelly! Anyway even though she seems to be doing better on this stuff they dont't think she has an allergy. They are going to keep her on this formula because for some reason she is tolerating it better then the other stuff. So hopefully this will somewhat address her eating and gaining issues. Time will only tell. I guess. She is still also on a .91 kcal diet. So I'm not sure how long they will keep her on that. So that is another question I have yet. As for the "episode" she had that brought us in here (she was white as a ghost, completely lethargic, and her lips were blue), they are doing some more testing. They are sending her for an EEG to see of she is possibly having seizures. They are also sending her for a barium swallow x-ray to see if she may have been born with an abnormality where her wind pipe and food pipe are connected. If that would be the case she would need surgery to correct that. They are also potentially sending her for a surgical procedure where they knock her out and put a scope down her throat to look for any abnormalities there. I should find out Monday of they are going to do that. Another thing they are wanting to do this week is get a proper echocardiogram done. She's had one done before but because she moved around so much they couldn't get the best look. So they would like a closer look. Now this will also involve sedating her so I'm not sure when they can do that. So I don't think we'll know much more over the weekend. Looks like we are going tohave to wait till Monday f

1 comment:

  1. Thank you for the update, very much appreciated. Bea & I will continue to pray for your family.

    dad

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