Update on Doctor's appointment

So we had M's appointment yesterday. As you probably saw on my FB status already, she gained some weight! YAY!!!!! I was extremely excited and happy, but once my doctor did the daily calculation, I was disappointed and discouraged to see that she still isn't gaining enough. But I'm just going to focus on the fact that she actually gained some weight this week! That's at least a step in the right direction. 

I sat and talked with my doctor for almost an hour about all that has been going on and I out right asked her if she was concerned about M and if so, how concerned?  She responded by telling me that she didn't think Maddy had any extremely serious disease, but she is concerned that M is on the highest calorie diet that she can be on and still isn't gaining much weight and hasn't grown length wise at all. (since she was 6 weeks old anyway) So she has ordered a second opinion for us. She has (without me asking for it:)) called another doctor and asked her to come and see us next week to go over M's whole story and see what she has to say. She said it may involve doing a bunch of the tests that have been done over again, and she may order new tests too. But she said to go with whatever she requests and see where she goes with this. I was THRILLED when she told me this. I was thinking of going for a second opinion, but I'm so very happy that I don't have to, and that my doctor has put this all together for me already!

Once we've seen her, my doctor said the next steps she wants to take are going back to have another cardiology consult done, and also getting a neurological consult done. I also have to call the nutritionist today to give her M's latest weight numbers and see what she wants done. I'm sure all it will involve is keep doing what I'm doing. I'm 99.9% sure she won't order a feeding tube (which is the next step) after only being on this highest calorie diet for one week.

The other thing my doctor told me is that so far developmentally she is on track, and that the fat she does have, looks like "healthy fat". I'm not really sure what that means, but I take it as a good thing. :) To me she looks a whole lot better this week, so I hope and pray she just continues on this upward swing.