Update from Appointment

M put on a little bit more weight. Not much at all, but definitely some. Still not what we were hoping for, but I'm trying hard to look at it more positively.

Her doctor seemed quite surprised that she hadn't really gained all that much since she's done so well with her eating (except for the past few days which I'll talk about in a minute). She didn't really know what to say or do. I was quite frustrated. The results from the stool tests have not come back except for blood and parasites. Those were both negative. We sort of left it that we'll see what the GI has to say next week. It was also determined that we will for sure be revisiting the heart specialist, but not till she can sit on her own. So hopefully she does that sooner rather then later.

Now back to her eating. This is day #4 of really poor eating again. I talked to the nutritionist about that yesterday and she was concerned about her lack of eating again.  I have to admit that I'm getting pretty tired of no one making a decision on what to do next. We've had quite a few things dangled in our faces for quite some time, but we're always told "Wait and see what she does". Well she's been doing the same thing for 5 months!! So I would really appreciate if we would just decide on a plan of action and actually go forward. I know some of these things are very invasive so they don't want to do anything unnecessarily.  I get that. I'm just tired of "waiting and seeing". Maybe that's what's necessary? I don't know. All I know is that I'm a human and humans like to fix things. So I naturally want something done to fix this too!

Whoa, sorry for the vent session there. So what are we doing next? Seeing the GI specialist on Wednesday. And in the mean time the nutritionist suggested I try giving her cereal. I wasn't thrilled about that idea, but she said if her drinking slows down any more, then to stop.  So I'll try it!